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Impact of COVID-19 related healthcare crisis on treatments for patients with lysosomal storage disorders, the first Italian experience #MMPMID32386848
Sechi A; Macor D; Valent S; Da Riol RM; Zanatta M; Spinelli A; Bianchi K; Bertossi N; Dardis A; Valent F; Scarpa M
Mol Genet Metab 2020[Jul]; 130 (3): 170-171 PMID32386848show ga
The direct and indirect effects of Coronavirus Disease-19 (COVID-19) pandemic, on Italian patients with lysosomal storage disorders receiving therapy, were analyzed by a phone questionnaire. No proved COVID-19 emerged among 102 interviewed. No problems were reported by patients receiving oral treatments. Forty-nine% of patients receiving enzyme replacement therapy in hospitals experienced disruptions, versus 6% of those home-treated. The main reasons of missed infusions were fear of infection (62.9%) and re-organization of the infusion centers (37%).